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اختصاصات اللجنة العلمية للأمراض الوراثية والنادرة بقانون الطوارئ الطبية

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ما يعرفه ريفو عن الخبر

  • حدد القانون رقم 5 لسنة 2024 اختصاصات اللجنة العلمية للأمراض الوراثية والنادرة ضمن صندوق مواجهة الطوارئ الطبية.
  • تختص اللجنة باقتراح قائمة الأمراض الوراثية والنادرة التي تستحق الدعم المالي للعلاجات الخاصة بها.
  • تتولى اللجنة اقتراح الدلائل الإرشادية للأمراض الوراثية والنادرة بالتعاون مع الجهات ذات الصلة.
  • تقوم اللجنة بتقديم تقارير فنية دورية لمجلس إدارة الصندوق حول سبل مواجهة هذه الأمراض على المستوى القومي.

حدد القانون رقم 5 لسنة 2024 بتعديل بعض أحكام القانون رقم 139لسنة 2021 بإنشاء صندوق مواجهة الطوارئ الطبية لدعم وتمويل الخدمات الطبية المقدمة للمواطنين
المصدر:اليوم السابع
اختصاصات اللجنة العلمية للأمراض الوراثية والنادرة بقانون الطوارئ الطبية

المصدر: اليوم السابع – سياسة

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